Contents

Acknowledgements

List of Maps

List of figures

List of Boxes

List of Acronyms

Executive Summary

Key Points

1. Introduction

1.1 The Inter-Agency Standing Committee Guidelines on Disability Inclusion in Humanitarian Action

1.2 The Humanitarian Situation in South Sudan

1.3 Purpose and Key Research Questions

1.4 Relevance

1.5 The Structure of This Report

2. Methodology

2.1 Case Selection

2.2 Data Collection Methods

2.3 Data Analysis Methods

2.4 Limitations

3. Barriers to Disability-Inclusive Humanitarian Action

3.1 Persons with Disabilities

3.2 Legal and Policy Context

3.3 Attitudinal Barriers: Stigma and Discrimination

3.4 Lack of Meaningful Participation and the Fragmented Presence of Organizations of Persons with Disabilities

3.5 Perceptions of Disability: an Additional Complexity in an Already Complex Context

3.6 Conclusion

4. Progress towards Disability-Inclusive Humanitarian Action

4.1 Meaningful Participation

4.1.1 Involve the community leaders

4.1.2 Set up and cooperate with community groups

4.1.3 Conclusion on meaningful participation

4.2 Remove Barriers

4.2.1 Remove attitudinal barriers

4.2.2 Remove environmental barriers

4.2.3 Remove institutional barriers

4.2.4 Conclusion on barriers

4.3 Empowerment and Capacity Development

4.3.1 Conclusion on empowerment and capacity development

4.4 Data Collection and Monitoring

4.4.1 Conclusion on data collection and monitoring

4.5 Conclusion: Progress towards Inclusion

5. Conclusions

5.1 Main Findings

5.2 Recommendations

5.2.1 Donors

5.2.2 National decision-makers

5.2.3 Local traditional leaders

5.2.4 Humanitarian Country Team

5.2.5 Humanitarian organizations

5.2.6 Persons with disabilities and organizations of persons with disabilities

5.2.7 Further research

Bibliography

Annex

Breakdown of Expert Interviews

Breakdown of Focus Group Discussions with Persons with Disabilities

Notes